Hospital Appointments and HRT

Since the last (only) time I wrote about my Turners Syndrome a lot has happened, I still don't know too much in terms of it's effects on me but the check ups and treatments are well underway so I just thought I would go over that here for anyone that may want to know the kind of tests/check up us turners ladies have.

Medication

There are only 2 types of medication that I take currently

• 3 vitamin D supplements in a high strength in the morning. These are due to a deficiency in Vitamin D which has affected my bone health. I was diagnosed with osteopenia meaning I have weak bones but not so weak that they would break with ease just through a fall etc. 
• 3 oestrogen tablets (ethinylestradiol) on a night. This is my hormone replacement therapy which is standard for girls with turners syndrome as well as lots of other women that have issues with their hormone regulation. This currently is purely oestrogen for now until my doctor sees fit to transfer me to the combined pill with progesterone in.

Tests/Screening

As you can imagine, I've been subjected to a lot of prodding and probing in the past year and a bit just to make sure I'm in tip top shape. Some of the tests I have had done are:

• Enumerable blood tests to diagnose any deficiency or abnormality in the blood. As mentioned above the only deficiency right now is Vitamin D however in my last set of tests, my ferritin levels came back as low so my doctor has decided if they are any lower by my next appointment, I will be put onto supplements for that too.  
• A Dexa scan to check my bone density levels - this was the test that discovered my osteopenia.
• An MRI scan for my uterus to see what shape it was in, this came back normal
• A healthy heart test to ensure my heart was working as it should be - this was just an ECG which came back fine
• A cardiac ultrasound - this was just to see what my heart actually looked like and to make sure there were no problems with my aortic valve - weirdly, this was my favourite of all the tests as I got to see my heart on the screen in the same way an expectant parent see's their child both are fascinating to see.

I can't actually think of any other tests I've done but aside from that I have regular check ups at the hospital to discuss my general well-being, plans for parenthood and my extremely terrible food habits (I always get a telling off about that last one)

In general, I'm very happy with my progress since diagnosis both personal and physical, a lot of things have begun to make sense, I joined the UK Turners Syndrome Support Society and often interact with the other TS ladies and parents which is always helpful and full of support where needed. 

Thanks for reading, 

Hayl xo

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My stay at Wynyard Hall

Back in April (I drafted a lot of posts ready to come back!), I went with two of my friends to stay at Wynyard Hall and have some time at their spa. If you've not heard of it, Wynyard Hall is a beautiful country hotel in (would you believe...) Wynyard in Teesside.

So, on arrival, we were greeted at the welcome desk, given our key and taken to our room, we were staying in the Mount Stewart Suite which is one of their junior suites to fit up to 4 people. Our room had a nice view of the front of the grounds as it was just above the entrance to the hall. The room was gorgeous sadly I didn't take any photo's to upload, it had 1 double bed and a double sofa bed too. Also in the room was the standard tea and coffee provisions (complementary) and an array of bathroom goodies to sample too. there was also a tv and dvd player which was handy as we had wanted to watch a film whilst we got ready for the night. I took a handful of DVD's although they did have a their own library that you could loan from should you have wished to do so.

On the night, we decided we would go to a local pub for tea called The Stables. The food was to die for and the portions were HUGE! We got potato skins as a starter and the waiter recommended we get 2 between the 3 of us rather than each get 1 and even then I don't think we ate it all! I then got a trusty Chicken Parmesan 'Parmo' for my main, it came with chips but they were about an inch thick and wide again it's safe to say, I did not finish that! We were all far too stuffed for dessert so we went into the bar for drinks. The atmosphere was lovely and we had a fantastic night (and of course it wouldn't be a trip to any pub without me leaving v. tipsy).

The next morning, we went down for breakfast at around 8am and each got a full english as well as a few bits from the continental spread they had. Once full, we then headed to the spa. None of us really fancied an actual treatment so we just spent our time trying out all of the facilities - the hot tub being the clear winner for us all I believe!

Overall, it was a lovely stay and I'd love to do it all over again

Hayl xo

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